We hope that these resources will help you find books to read, find web sites to visit, and connect with the support groups and other services you need for specific help.
NAMI Sacramento also offers educational programs where you can learn more about living with a mental disorder. See Education for training classes and studies.
Follow the links at left for more information.
Special Needs Estate Planning
- Many families face the challenge of planning for a loved one disabled with a severe mental illness. See the NAMI Special Needs Estate Planning Guidance System.
- Planned Lifetime Assistance Network (PLAN) of California was formed to answer the question being asked by families of people with severe mental illness. “Who will care when the family is no longer there?”
Next of Kin Registry
This service may be useful for notifying family members when a loved one is jailed or hospitalized.
The National Alliance for Caregiving provides support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers. Read about the health impact of caring for loved ones at http://www.caregiving.org/.
In Winter 2014 NAMI Advocate magazine there is a really good article on HIPAA. It talks about the law and ways that families can communicate with medical and psychiatric professionals in spite of the HIPAA restrictions on patient confidentiality. It is co-written by a doctor and a lawyer and it provides a checklist for parents and families to use with treatment providers. As you know, HIPAA is often used as a barrier to communication and this is a constant source of frustration for family members: Understanding HIPAA.
Can’t find the help you need?
If you need specific resources that you can’t find here, please let us know.